It’s been a while since I talked about my never-ending headache so I figured an update was in order.
When my headache started near the end of March I really thought it would be a quick fix – after all, I’d been plagued by these headaches five years ago and had gone through all the tests and medications then, finally finding one that worked. I foolishly assumed this time I’d get back on the old med and VOILA! My headache would be gone and life would resume as it once had. Instead I had an insecure doctor who didn’t want to give me the medication that worked before. Eventually she told me she wouldn’t prescribe me anything without getting another MRI.
So I got an MRI. And I learned I had a lesion on my brain. This lead to a CT scan, a consult with a neurosurgeon, and a lot of worries. It also lead to me naming my lesion Napoleon and finding a little humor along the way. I learned I didn’t need brain surgery - thank Buddha – but my headaches still plagued me, sometimes bringing me to tears and pushing my pain level to a full 10.
My new neurologist tried other drugs. Nothing worked. Then he tried Botox. It initially sucked. And then he added another drug and suddenly, for the first time in over four months, I had an entire day where I didn’t have a headache. An entire day! You cannot imagine the relief that day brought. That night my boyfriend and I went out with a friend for dinner and I celebrated my headache-free status by drinking a (half of a) giant margarita. Because everyone celebrates a headache-free day with tequila, right?
I’m now 3 weeks (mostly) headache-free – I’ve had a few headaches but they are no longer a daily occurrence. I don’t know if it’s the new med or the combination of the Botox and the medicine, all I know is it’s working. And I am grateful, so-so-so grateful.